By Katrina B.
I thank Gary and Lilian for sharing their experiences, findings, and recommendations regarding Parkinson’s. I have a Parkinson’s diagnosis and also experienced the cold news of “no cure, progressively degenerative,” etc. I purchased and read Lilian’s book. Very encouraging and refreshing. I also bought a book Gary recommended called Music As Medicine (Daphne Bryan, author), which has helped me to walk without firing the dystonia in my left foot. That’s a huge win for me! I followed links in Gary’s material to videos on breathing techniques to release stress and reduce my adrenaline. That’s helped my tremoring remarkably. So… many thanks to Gary and Lilian. I will continue to follow and engage. Oh, and I have shared your names and resources with my occupational therapist, physical therapist, and speech therapist. They were very interested. I tried to share with my neurologist. He wasn’t interested. No surprise there.
Read MoreBy Brandon Knight
Outstanding information, you are very helpful as you explain what you are feeling in a clear way. Thanks for putting in the effort to make these. Disconnect between the brain and body feels about right to me and I will be making some devices for myself to test out. Just started with sinemet and I am 40 so far it has been a big help my right foot has been about like yours since I was 34. I am not even sure if I have Parkinson's maybe some other dopamine issue have dat scan scheduled seen multiple neurologist and they have not been able to pin it down they are going off medication response at this point thinking it might be a dopamine responsive dystonia. Any way just wanted to thank you for putting these together and explaining that the medication on its own will not be enough. The sinemet gave me to mobility to move with less pain so I can work out again as well as helped me think more clearly but I do believe that it is what you do with the room the medication buys you that will make the difference although I understand we are all different. Thank you again for posting these they do help.
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